Some individuals worry about their employers, their health insurance company, or other types of insurance companies using the information gained from genetic testing against them. Using the information in this manner is called genetic discrimination. Fortunately, there are federal laws (and in some cases state laws) in place designed to help protect individuals from genetic discrimination.
With this combination of laws, most New York State residents are well protected from genetic discrimination with regard to health insurance and employment. At this time, in New York State, these laws do not cover areas such as life insurance, disability insurance and long-term care insurance.
***Please note that laws may change over time and a Genetic Counselor will discuss the current regulations at the time of a consultation
Please see this overview of genetic discrimination legislation from the National Human Genome Research Institute for details on the specific protections provided: Genome Genetic Discrimination
Other Useful Links
Genetic Alliance resource on GINA: Genetic Information Nondiscrimination Act – Help
GINA information from the Department of Health and Human Services: The Genetic Information Nondiscrimination Act of 2008 – Information for Researchers and Health Care Professionals